The 37e The edition of the Telethon which began Friday evening concluded during the night of Saturday to Sunday with a final prize pool of more than 80 million euros, according to the AFM (French Association against Muscular Dystrophies).
At the end of the session, in the middle of the night, the pledge counter showed precisely 80,671,222 euros. A sum which “testifies to the confidence and exceptional mobilization of donors and volunteers for this edition rich in victories against the disease and in promises for all those who await the diagnosis and treatment that will change their lives”welcomed the association, co-organizer of the event since its first edition in 1987.
In 2022, the Telethon raised 90.8 million euros, the best result since 2016 (80.3 million euros), after two years disrupted by the Covid pandemic.
Beyond the research challenges, the Telethon remains a unique event: this year it mobilized more than 200,000 volunteers and took place in more than 10,000 municipalities, with many unusual challenges: a farandole of several hundred people in Tonnerre (Yonne), or a marathon of swimming laps in twelve hours in La Guerche-de-Bretagne (Ille-et-Vilaine).
Like every year, events were organized in several cities in France, the event mobilized France Télévisions for thirty hours of live broadcast, and the 2023 edition was sponsored by the singer Vianney.
The “official dance” of the Olympics revealed
The 2023 edition made several nods to the 2024 Summer Olympics, which will take place in Paris. With for example the “official dance” of the 2024 Olympic Games, designed by choreographer Mourad Merzouki and unveiled for the first time on television during the Telethon.
In addition to field collections, pledges of donations by telephone, online, a games marathon and a raffle were on the menu. In 2022, the AFM has dedicated some 58 million euros to the research and development of new therapies.
This research particularly targets rare diseases, 95% of which remain without treatment or even diagnosis. “The first victories are there, and have really accelerated since 2018-2019”declared Laurence Tiennot-Herment, president of the AFM, on Friday.
Early detection, before the first symptoms, remains crucial. Since January, two regions, Grand-Est and Nouvelle-Aquitaine, have been experimenting with genetic screening for spinal muscular atrophy at birth. Four babies thus diagnosed were treated, a fifth will be “probably in 19 days”greets the president of the AFM-Téléthon.
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At the same time, 38 therapeutic trials in humans, supported by the association, are underway or in preparation for 29 different diseases.
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Le Monde with AFP